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This support group is created by patients for patients in the belief that together we can make a difference in the quality of our lives.
Please join us at our meetings when you can! The cost is FREE.
For a current flyer and contact information, please click on the "Flyer" link on the left of this page. Please try to rsvp if at all possible. We look forward to seeing you!
MEETING DATES FOR 2010
EDUCATIONAL MEETINGS:
Times and Dates will vary depending on the speakers's availability.
St. Lukes Rehabilitation Institute, 711 So. Cowley St., (location map), Lower Level Board Room (unless otherwise indicated), Spokane
- Wednesday, Feb. 10th, 2010, 7:00-8:30 p.m.,
St. Lukes Rehab. Inst., Room #200 (adjacent to front reception desk)
Exploring the Brain
LEARNING ABOUT DYSTONIA AND THE BRAIN
William Britt, Jr., MD
Dr. Britt will give us an overview of dystonia and the parts of the brain that are affected.
Family & friends welcome. Cost is FREE.
- Thursday, March 11, 2010, 7:00-8:30 p.m.,
St. Lukes Rehab. Inst., Room #200 (adjacent to front reception desk)
Exploring the Brain
BRAIN FITNESS
We will view and discuss an excellent PBS video about the brain and the role of plasticity in improving brain function.
Family & friends welcome. Cost is FREE..
- Thursday, April 15, 2010, 7:00-8:30 p.m.,
St. Lukes Rehab. Inst., Room 200, (adjacent to front reception desk)
Living with Dystonia
DYSTONIA: Defining & Treating this Disorder
David Greeley, MD, FAAN
Dr. Greeley, a Spokane neurologist, will give us a definition of dystonia and explain the medical therapies available for treatment. As a member of the International Dystonia Study Group, he can also update us on the latest research. A Question-and-Answer session will follow the talk, so bring your questions and be prepared for an informative discussion.
Family & friends welcome. Cost is FREE.
- Saturday, May 15, 2010, 1:30-2:30 p.m..
St. Lukes Rehab. Inst., Room 200, (adjacent to front reception desk)
Living with Dystonia
Occupational Therapy for Daily Living with Dystonia
William Gibson, OTR/C,
Bill Gibson is an occupational therapist whose wife has dystonia. He will give us an inside perspective on how we can best work with an Occupational Therapist to better cope with this challenging disorder. His talk will be relevent to those of us with dystonia and to our loved ones who support us on a daily basis.
Family & friends welcome. Cost is FREE.
- Tuesday, June 8, 2010, 7:00-8:00 p.m.,
St. Lukes Rehab. Inst., Room LL1/2 (lower level, adjacent to cafeteria)
Living with Dystonia
I Think I am Relaxed: Now What?
Anthony Whitney, MS, IMHC, BCIA
With Dystonia our perceptions can become skewed by the erroneous sensory input we receive from overly contracted muscles and tightened joints. So our concept of being relaxed may not allow us to achieve a full state of deep relaxation. Anthony will help us understand the importance of breathing, relaxation and meditation, and the impact they have on our brains and bodies. He will give us a guide for starting to practice and develop more profound relaxation skills.
Family & friends welcome. Cost is FREE.
- July and August, 2009
We will not have meetings during these two summer months.
- September Meeting
Topic to be determined
Family & friends welcome. Cost is FREE.
- October Meeting
Date and time TBA
Structural Integration Therapy
Kevin Lucas, LMT, CSI
Structural Integration is a manual therapy that works on the fascia, the envelope that surrounds the muscles. A number of our members have found enormous relief through this therapy. An article in the National Spasmodic Torticollis (Cervical Dystonia) Association quoted a member who visited a physician in Houston who worked the fascia and found that after 7 months of therapy most of her symptoms are abated. Kevin Lucas will demonstrate how structural integration helps our muscles to move more fluidly and bring us relief.
Family & friends welcome. Cost is FREE.
- November Meeting
Topic to be determined
Family & friends welcome. Cost is FREE.
OTHER PROGRAMS OF INTEREST
Dance Therapy Group: DANCE FOR PARKINSON'S
The Parkinson's Resource Center of Spokane has developed a wonderful dance program based on the Mark Morris Dance Program in New York. We are invited to join in to develop better balance, freedom of movement, and confidence while discovering the joy of dance. It is truly FUN!
1st and 3rd Saturdays each month (except no classes during summer months from June through August)
11:00 a.m.-12:15 p.m.
Gonzaga Theatre Dance Studio
corner of Desmet and Pearl
Cost: $5
Future Voice Therapy Group: FINDING OUR VOICES
We are working to create a voice-with-music program which can strengthen our voices and raise our spirits. Updates will be given as this concept develops.
Meditation Group: VIPASSANA MEDITATION
EveryThursday 5:30-6:30 p.m.,
Buddhist Temple, 927 South Perry St., (location map), Spokane
Taught by Mary Webster of the Spokane Vipassana Meditation Community.
Learning meditation can help decrease anxiety as we confront dystonia. It can also help in every aspect of our lives
Family/friends welcome.
FINDING DR. SANTIAGO
Dr. Anthony Santiago will be working in the Muhammed Ali Parkinson's Center and Movement Disorders Clinic at the Barrow Neurological Institute in Phoenix, AZ.
240 W. Thomas Road Suite 301
Phoenix, AZ 85013
Phone (602) 406-4931
They are currently creating a patient list for future appointments which will start in the Fall, 2010.
We miss him and wish him well in his new practice. He is a great movement disorder specialist and helped many of us in the Spokane area.
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