This support group is created by patients for patients in the belief that together we can make a difference in the quality of our lives.
The following are resources that our members recommend
Neurologists in Spokane who treat Dystonia
William Britt, Jr., MD, Neurologist specializing in stroke and brain injury, Spokane,
42 E. Rowan, Spokane, WA 99207
Phone 509-489-3879
David Greeley, MD, FAAN, Neurologist, specializing in neurodegenerative diseases, Spokane,
Northwest Neurological
507 S. Washington, Suite 101, Spokane, WA 99204
Phone 509-458-7720
www.nwneurological.com
Salil Manek, MD, Neurologist, Fellowship trained movement disorder specialist, Spokane
Rockwood Main Clinic
400 E. 5th Ave., Spokane, WA 99202
Phone 509-838-2531
www.rockwoodclinic.com
Susie Ro, MD, Neurologist, Fellowship trained movement disorder specialist, Spokane
Northwest Neurological
507 S. Washington, Suite 101, Spokane, WA 99204
Phone 509-458-7720
www.nwneurological.com
Additional Physicians in Spokane who treat Dystonia
Patrick Soto, MD, DO, Physiatrist, Neuromusculoskeletal Specialist, Intrathecal Pump Specialist
Northwest Medical Rehabilitation
1315 N. Division
Spokane, WA 99202
Phone 509-321-2279
www.nwmedicalrehab.com
Karen Stanek, MD, Physiatrist (rehabilitative medicine), specializing in spasticity
Northwest Medical Rehabilitation
1315 N. Division
Spokane, WA 99202
Phone 509-624-0908
www.nwmedicalrehab.com
Physicians outside of Spokane who treat Dystonia
Pinky Agarwal, MD, Neurologist, Fellowship trained movement disorder specialist, Seattle
Booth Gardner Center
13030 121st Way NE, Suite 300
Kirkland, WA
425-899-3123
www.evergreenhospital.org
Monique Giroux, MD, Neurologist, Fellowship trained movement disorder specialist, Seattle
Allen Hillel, MD, Specializing in Laryngology & Otolaryngology
University of Washington Medical Center
Laryngology & Otolaryngology Head and Neck Center
1959 NE Pacific Street
Seattle WA 98195
(206) 598-4022
www.uwENT-headneck.org
Paul Hogan, III, MD, DO, Neurologist, Fellowship trained movement disorder specialist, Puget Sound
South Puget Sound Neurology
2201 S. 19th St., Suite 200, Tacoma, WA 98405
Phone 253-284-4488
www.psneurology.com
William Rossing, MD, Neurologist, Sioux Falls, SD
Neurology Associates, PC
1100 E. 21st St., Suite 506
Sioux Falls, SD 57105
605-332-1610
Anthony Santiago, MD, Neurologist, Fellowship trained movement disorder specialist,Phoenix, AZ
Mohammed Ali Parkinson's Center and Movement Disorder Clinic
Barrow Neurological Institute
240 W. Thomas Rd., Suite 301
Phoenix, AZ 85013
800-227-7691
602-406-4931
www.thebarrow.org
Lauren Seeberger, MD, Neurologist, Fellowship trained movement disorder specialist, Boise, ID
Idaho Elks Rehabilitation Hospital Movement Disorders Center
600 N. Robbins Rd.
Boise, ID 83702
208-489-4599
www.idahoelksrehab.org
Other physicians that we recommend
Audiologists
Lesly Loiseau, AuD
Deaconess Medical Bldg.,
801 W. 5th, Suite 112
Spokane, WA 99204
509-835-5111
www.spokanesudiologyclinic.net
Chiropractors
Kelli Pearson, DC, DABCO
Pearson & WearyPain Relief Clinic
1410 N. Mullan, Suite 200
Spokane, WA
509-927-8997
www.pearsonweary.com
...and Neuro-Chiropractors doing interesting work with dystonia patients
Glen Zelinski, DC, DACNB, specializing in Chiropractic Neurology
Integrated Physicians Group
4035 Mercantile Drive, Suite 112
Lake Oswego, OR (outside Portland)
503-203-1177
www.integratedphysicians.com
Ted Carrick, DC, PhD
Carrick Institute for Graduate Studies
8941 Lake Dr.
Cape Canaveral, FL
32920
321-868-6464
www.carrickinstitute.org
Dermatologists
Benjamin Hsu, MD
Northwest Dermatology
Northpointe Medical Park
757 E. Holland Ave.
Spokane, WA 99218
509-444-6367
www.northwestderm.com
General Practitioners
Dr. Jeffrey Clode, MD
Physicians Clinic
Sacred Heart Medical Center Building
820 S. McClellan, Suite 500
Spokane, WA
509-353-3950
www.physiciansclinicspokane.com
ENT
Neil Giddings, MD, Specializing in Otology & Neurootology
Spokane Ear, Nose & Throat Clinic, P.S.
217 W Cataldo
Spokane, WA 99201
also, on North side
5901 N. Mayfair
Spokane, WA 99208
509-624-2326
(for both offices)
www.spokaneent.com
Omar Husein, MD, specializing inOtorhinolaryngology, Facial Plastic & Reconstructive Surgery, Head & Neck Surgery
Spokane Valley Ear, Nose Throat and Facial Plastics
1424 N. McDonald, Suite 101
Spokane Valley, WA 99216
509-928-7272
www.spokanevalleyent.com
Al Pokorny, MD, specializing in General Otolaryngology, Sinus & Allergy
Spokane Ear, Nose & Throat Clinic, P.S.
217 W Cataldo
Spokane, WA 99201
also, on North side
5901 N. Mayfair
Spokane, WA 99208
509-624-2326
(for both offices)
www.spokaneent.com
Psychologists
Dr. Darelle Volwiler, PhD, Clinical psychologist
Volwiler Counseling
910 N. Washington, Suite 211
Spokane, WA 99201
www.volwilercounseling.com
Ronald Klein, PhD, Clinical Psychologist, Nueropsychologist
601 W. Main, Suite 1011
Spokane, WA 99201
509-838-1285
Jennifer Van Wey, PsyD, Clinical Psychologist, Neuropsychologist
Northwest Neurobehavioral Institute
421 W. Riverside Ave, Suite 310
Spokane, WA 99201
509-456-3600
www.spokanebrain.com
Social Security Disability Insurance Agents
Fred Johnson
Fred has dystonia himself and has helped many people with dystonia get insurance.
1-800-536-0454
Therapists that we recommend to help you deal with dystonia
Massage Therapists
Kevin Lucas, LMP, BCSI - Structural Integration therapapist (gently releases the fascia binding to muscles)
Structural Innovations
12929 E. Sprague Ave., Suite 104
Spokane Valley, WA
509-891-2368
www.structuralinnovations.us
Andrea Marie, LMP - Craniosacral therapy, visceral manipulation, lymphatic drainage
Synergy
1605 W. Garland Ave.
Spokane, WA 99205
509-444-8383
Physical Therapists
Len Norfleet, P.T., B.C.A.T., specializing in neuro kinetic systems (NKS)
NKS Rehab & Wellness Center
1303 S. Grand Blvd.
Spokane, WA 99202
509-838-6060
Speech Therapists
Doreen Nicholas, MS, CCC-SLP, MHPA,
Senior Lecturer and Clinical Director of the
University Hearing and Speech Clinic at EWU
EWU Riverpoint Campus, in the Health Sciences Bldg.
509-828-1323
www.ewu.edu/CSHE/programs/communication-disorders
Lynette Norton, CCC-SLP
Providence Holy Family Hospital
Rehabilitation Services
5633 N. Lidgerwood
Spokane, WA 99208
509-482-2193
www2.providence.org
Support Groups
Puget Sound Dystonia Support Group
ALSSO for Lou Gehrig's Disease, 509-467-8761 in Spokane
Other Wonderful Resources We Recommend
Books
The Brain that Changes Itself (for learning more about the brain)
My Stroke of Insight (for learning more about the brain)
Relaxercise (a book for learning gentle exercise)
Total Relaxation (includes a cd for listeningto guided relaxations)
Yoga for Movement Disorders (good for developing a home yoga routine)
Meditation
Spokane Vipassana Meditation Community with Mary Webster
Mindfulness Meditation with Dori Langevin
Meals on Wheels
Relaxation and Stress Management
St. Luke's Rehab. Inst. Biofeedback/Outpatient Psych
Seating & Mobility
American Seating & Mobility - Wheelchairs, ramps and more
Kersey-Mobility - Wheelchair Vans & Scooter Lifts
Obus Forn - chair back cushions, back supports and more
Tai Chi & Qigong
Bryan Knack, Ph.D., Ma,D.Sc.
Northwest Tai Chi & Qigong
2802 N. Monroe
Spokane, WA 99203
509-499-1264
www.NWTaiChi.com
Wheelchair Vans and Scooter Lifts
Yoga Instruction
Sunflower Yoga, an Iyengar yoga studio serving Spokane and Spokane Valley
